Researchers, clinicians, and faculty at GHS and USC SOM Greenville determined that they lacked a process to provide patient input into research projects and clinical innovations. We committed to developing a strategy for inclusion of patients and community members that would inform future research projects. In part this decision was informed by the Patient Centered Outcomes Research Institute (PCORI) (Link to PCORI.org) founded in 2010 for the purpose of encouraging research that would provide information for people to make informed healthcare decisions, such as:
- “Given my personal characteristics, conditions, and preferences, what should I expect will happen to me?”
- “What are my options, and what are the potential benefits and harms of those options?”
- “What can I do to improve the outcomes that are most important to me?”
- “How can clinicians and the care delivery systems they work in help me make the best decisions about my health and health care?”
Our Health Science Center Patient Engagement Studio began in February of 2016, and was modeled after a similar initiative at Vanderbilt University (Learn more about Vanderbilt’s Community Engagement Studio at Vanderbilt here and here). A Studio Board guides the Patient Engagement Studio that includes three scientists (experienced in quality initiatives), three academic physician clinicians from the Greenville Health System, a Patient Experience expert, and 8-12 patient partners (“experts”).