From a research perspective, patient insights help ensure proposed research benefits patients, increase the relevance of research to patients’ daily lives, and help identify ways patients can learn and use study results. Patients’ opinions may enhance health system innovations by identifying quality improvement opportunities that matter most to patients, increase patient safety, and enhance patience experience. Finally, including patient perspectives helps generate information that patients can use to make effective treatment decisions.
The Patient Centered Outcomes Research Institute (PCORI) provides general guidance on how health service practitioners may comprehensively integrate patients into the research process. This rubric guides researchers toward more effectively involving patients in research.